I thought I might write a little bit about where I am with my MS at the moment in today’s blog.
November this year will be 25 years since my first symptom (Optical Neuritus) which started this long bumpy ride I am on! It is quite hard to remember how long it has been, definitely with lots of ups and downs! But I’m still here and still fighting as hard as I can every single day!
Obviously I have good days and bad days, but I work very hard to keep a smile on my face every day. I don’t think it works on Hales though, after all these years together I’m fairly sure she knows exactly how I am really feeling despite the smile!
My main symptoms at the moment. Achy weak legs, balance problems, bladder problems, loss of feeling and strength in my arms, double vision with some trouble focussing. My MS moved to secondary progressive about 8 or 9 years ago which basically means my symptoms are just gradually worsening over time. It is what it is though and I don’t really think about it much.
With this lockdown I am waiting for things to calm down as I am waiting for a couple of appointments to try to improve a couple of my symptoms. Firstly with the eye department to try to improve the problems with my double vision. Also with the urology department for BOTOX injections into my bladder.
The BOTOX injections should help with the problems I have. Urgency, Frequency and Hesitancy. It will mean I have to self catheterise when I need to go but I have started doing þhat already and it has had a big change already. I catheter just before I go to bed and I can now sleep right through without needing to go to the loo! This is something I have not been able to do for a lot of years, having to go at least once or twice during the night!
So already a massive improvement and hopefully the BOTOX will improve things even more!
Well I think that will do for today, I could easily write more but will safe it for another day!
Rob
My Life and My MS 