So I asked a few people to do me guest blogs. And here is the first from Hales, my wife, my very best friend and totally my soulmate!!
So Rob asked me to write a piece for his blog. For those who know me I am quite a private person who does not do social media and tend to keep thoughts and my life private.
However I think Rob finds writing a blog therapeutic and a nice way to look back on good and bad memories.
When Rob was first diagnosed we knew nothing about MS. I remember we were sent home from the hospital with very little literature and a dvd. I can remember watching it with a stunning young girl, very young, in a wheelchair feeling so sorry for her and we were both quite surprised at how quickly you can deteriorate.
Over the years Rob has always been very positive, something he got from his Gran who was very ill for a long while but always remained in good spirits and always positive. I hate to see him having a down day, and being the most impatient of people, tend to either tell him to get over it (not helpful I expect) or ignore him and leave him to work through it. That may seem harsh but I don’t want to make him more down or upset, and do struggle to understand how he is feeling some days, even after all these years.
His perseverance and positive attitude is inspirational and I get so angry and frustrated when he is having a bad day and struggling to do anything as he has always been so active, it is just so unfair. You don’t wish anything bad on anyone, but he definitely doesn’t deserve to be living this way when you see and hear other people taking so much for granted.
A few people have asked me how I cope but it isn’t about me. Rob is the same person, just has that ‘wambly, drunk’ walk down to a tee lol and we just adapt the things we do and way we live so he can still be involved and do things. we are the same as any other couple, we just appreciate each other and live a little happier than most. The one thing I hate that he gave up is scuba diving as I know how much he loved it. Instead of thinking he would be a burden to the instructor i wish he would proactively look for someone who accommodates disabled divers, but that is his choice (and being a typical man won’t listen to me anyway lol).
I can’t imagine our lives any different now and still love him as much, if not more than when we met. Yes he still annoys me sometimes as I do him I am sure, and he really could do the hoovering once in a while, but I am so proud of him for continuing to fight this condition and would love there to be a breakthrough in research soon to slow down the deterioration for him and others.
I am looking forward to many more years of happiness with Rob, my partner and best friend I love you hun xxx
“our memories of the ocean will linger on, long after our footprints in the sand have gone”
That will have to do xx
Hales
My Life and My MS 
This did make me cry a little bit. When your wife is saying that you are inspirational you know that what you are doing is good!
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